Skate Under the Stars
Skate Under the Stars is back for a third year at the Centene Community Ice Center! The family-friendly event celebrating Rare Disease Day (February 28) will hit the ice on March 4, with inclusive skating and fun activities for children and families. The event is presented by United for Rare, an online community for families of children with rare diseases, and The Take Part Foundation, a St. Louis-based 501(c)(3) nonprofit that identifies and funds medical research for rare pediatric conditions. All proceeds from the event will support rare disease research and genetic testing, with a focus on programs at St. Louis Children’s Hospital.
Sponsors for the event include The Sappington Family Foundation, Blues for Kids, and Taylor Family Department of Neurosurgery, Washington University.
What to Expect:
-Inclusive ice skating for children with rare diseases – wheelchairs and other mobility aids are welcome on the ice!
-Face painting, hot chocolate, kid-friendly treats and a visit from St. Louis Blues’ very own Louie!
Event Details:
-Date: Tuesday, March 4, 2025
-Time: 5:30-7:30 p.m.
-Venue: Centene Community Ice Center
-$25 for skating, drinks and food — free for rare disease warriors!
About the Take Part Foundation:
The Take Part Foundation is a 501(c)(3) nonprofit dedicated to helping children with rare and undiagnosed diseases thrive. Too often, the research needed to advance life-altering therapies for children with rare conditions lacks adequate funding. Take Part funds research, provides resources for rare and undiagnosed families to better tell their stories and assists with access to genetic testing needed for a diagnosis. The nonprofit was founded by Matt and Maria Granados, parents of Natalie, who suffers from a rare genetic disorder, PYROXD1. The foundation empowers families of children with rare diseases, allowing anyone to “take part” in fighting for what’s possible. Learn more at https://take-part.org/.
About United for Rare:
United for Rare is an online community dedicated to parents and caregivers of children living with rare diseases. The community was established as a safe space for all to come together and support one another, no matter what their path looks like. Facing the challenges and difficult situations a rare disease may bring can feel lonely, isolating and scary — United for Rare provides a community to lean on. The group provides resources on rare diseases and a blog for families to share their unique stories. They also regularly hold meetups and events for members to connect with others. To learn more, or how you can get involved, visit https://www.unitedforrare.com/.
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Event Links
Tickets: https://go.evvnt.com/2878187-0
Website: https://go.evvnt.com/2878187-2
